Everything changes so quickly. One day I'll feel wonderful, and an hour later my eyes will swell, my face will go numb, and I'll be informed that there's something wrong with me face. Yes, that's right, there really was something wrong with my face. I had been experiencing facial numbness, what I didn't realize was that I was also having trouble "moving" my face. So other people could also tell I was experiencing facial numbness. It was almost as if my face was morphing. I ran to a mirror and it looked as if my top lip was just sort of hanging there. The only way I can think of describing it is, if you've ever been given a Novocaine shot with dental work, the feeling you have afterwards where you could be drooling and not even know, that's what I was feeling like. I also had difficulty smiling right and swallowing. Right when I felt like we were figuring this whole mess out, something changes so suddenly.
I thought I was experiencing more symptoms of my condition. As it turns out these were not symptoms of the pseudotumor, but actually were horrible, damaging side effects of the medication that was just starting to fix me. Sadly, the only way for me to learn if it was my spinal pressure raising again was to go in for another spinal tap. Another trip to the hospital, two more pokes in the back, and yet another day spent away from my children. However, it was information I needed, and knowledge, right now, is very valuable. Sadly, since brain damage trumps elevated spinal pressure, this meant that even though my medication was FINALLY working on me, my doctor had no choice but to lower the dose and hope that it'll continue to work.
So more waiting, more limboing, more weekly doctors visits and more worrying. I have to say though that this experience is making me greatly appreciate being healthy.
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